Tag Archive for: community

Behind the Science: Indigenous practices at WISE Women’s College

Interviewee: Lisa Richardson | Authors/Editors: Romina Garcia de leon, Shayda Swann (Blog Co-coordinators)

Published: April 19th, 2023

What was the motivation to get the Centre for Wise Practises in Indigenous Health started at Women’s College? 

The initial motivation was based on observing the experiences of Indigenous peoples in the healthcare system, both those seeking care and Indigenous learners being trained as healthcare professionals. There was a desire to have a place where people would feel supported and not have to deny their Indigeneity but be in a place where that’s valued and seen. We wanted to create a place where one can have access to traditional cultural supports if needed and where they can be supported as a whole person – mind, body, spirit, and emotion in that model of care and well-being. 

Additionally, the Centre emerged at the time that it did because the Truth and Reconciliation Commission of Canada (TRC) had come up with specific health-related Calls to Action. I had been involved in writing a report around how healthcare institutions could incorporate those calls to action specifically, and so we sought to do that at Women’s College Hospital.

 

How are healthcare providers educated on Indigenous health?

We have some amazing online modules that exist for cultural safety. But there is also a need to come together in small groups and talk through some of what was heard.  We sometimes debrief provider and patient interactions.  For instance, if there was an incident where a patient felt uncomfortable, we want to ensure that the patient is supported but also consider how to make things better for next time.  This might include a specific healing session, facilitated by an Elder, where a provider and a patient come together and try to emerge from it in a restorative way. We also have speakers for important events like the Missing and Murdered Indigenous Women and Girls annual day of recognition and the National Day for Truth and Reconciliation. Through dialogue, small groups, and one-on-one conversations we try to educate healthcare providers on Indigenous health.

Since its opening in 2018, what have been the major outcomes of this initiative?  

One of the teachings that I had from an Elder on our Decision-Making Council was “Lisa, build a small fire and people will want to come.” I interpreted it as “don’t start by wanting to build this great big program. Just start by doing the work within Women’s College and eventually, people will want to participate if it’s done in a good way.” We have very strong community partnerships. We have an Elder-in-Residence who has a Traditional Medicine clinic. We have hired a Patient Relations advocate–an Indigenous peer support and a patient and relations advocate who will sit with patients to accompany them on their journey and connect them to resources both within and outside the hospital. We additionally have a team that goes into community organizations, meets with individuals and tells them about what we’re doing. I feel very strongly about recruiting and supporting the next generation of Indigenous people in health care–advocates, leaders, providers, and scientists, and so we have a lot of Indigenous learners who do their placements or work on projects with us. We have a collaboration with the medical school, which means that Indigenous medical students come and hang out in our space where they can be surrounded by Indigenous peoples, and connect with community members and Elders. We also have an amazing summer camp program for grades 9-10 Indigenous learners. Beyond the hospital, we have worked on outreach programs to help support Indigenous primary care practitioners who are working in isolation and on the reserves. We have specialists who are going out to the reserves to provide consultations as needed. 

 

When incorporating Indigenous voices, how do initiatives and foundations avoid non-meaningful engagement and prevent tokenism? 

I think building something slowly and carefully and led by Indigenous peoples has been important for us as well. This is the opposite of having a single person in a single role and on their own trying to transform a whole institution, which is generally not successful. Importantly, we have Indigenous people in senior leadership roles overseeing everything we do for accountability purposes.  I think one important structural aspect of the Centre is the dual accountability within my role. I report both to the CEO and to our Decision-Making Elders. I do my check-ins with both and thus am held accountable by leaders in our community who can advise me on what would and wouldn’t be appropriate. This is essential for me because it helps ensure that the work is grounded in the needs of our people.

 

Why the focus on women’s health? 

There’s a reason why we’re centred at Women’s College Hospital. It’s a hospital that cares for all people but understands some of the specific needs of women and gender-diverse peoples in healthcare.  At our Centre, we understand that for our communities and for the future generations to be healthy, we need women, children and families to be healthy.

Behind the Science: Improving the Health of Women Living with HIV

Interviewees: Tetiana Povshedna, PhD Student (University of British Columbia Department of Pathology and Laboratory Medicine); Marie-Soleil Smith, PhD Candidate (University of British Columbia Department of Pathology and Laboratory Medicine)  Authors/Editors: Romina Garcia de leon, Shayda Swann (Blog Co-coordinators).

Published: March 10th, 2023

Could you briefly explain what your research is about?

Tetiana: My research is part of The British Columbia CARMA-CHIWOS Collaboration (BCC3) Study, which seeks to better understand the process of aging among women living with HIV by examining the interplay between biological, clinical, and socio-structural determinants of health. In my thesis, I examine the associations between latent viral infections, inflammation, markers of cellular aging, and risk of comorbidities in women living with HIV. My work also explores chronic pain, which is often referred to as an “invisible disability” by community members due to its negative effects on all aspects of life and, in the context of HIV, treatment adherence and care. By raising awareness of this important comorbidity, we hope to improve chronic pain care for women living with HIV.

Marie-Soleil: My field of study lies at the cross-section of women’s health, HIV research, and the safety of medications taken while pregnant. My main project utilizes human embryonic stem cells as a model of an early developing embryo to find the safest antiretroviral regimens for use during pregnancy.

What led you to become interested in studying HIV and women’s health?

Tetiana: Historically, the majority of HIV research has involved men, thus limiting generalizability of findings to women, who constitute >50% of people living with HIV globally. The specific needs of half of the population of people living with HIV haven’t been addressed for years, and it’s only been changing recently. After my initial interest in HIV and aging, I was lucky to join the Côté Lab and get involved with community-based women-centered research. We have an amazing team of scientists, clinicians, and community members working together to answer women-specific questions in a meaningful way. 

Marie-Soleil: My interest in HIV research stemmed from my time at the BC Centre for Disease Control working as a co-op student. During my time there, my eyes were opened to the wide world of infectious disease research, particularly the more classically stigmatized sexually transmitted infections. I was energized by my brief stint in the field and was so grateful to find an opportunity to continue this important research in Dr. Côté’s lab. Although it was not intentional, I am very lucky to have landed in a lab that puts a major emphasis on women’s health research. This is especially true as women are now disproportionately affected by HIV.

Could you talk more about why clinical and cellular research are important?

Tetiana: It takes decades of diligent basic science research to advance a field to the point when the results are tangible in a clinical setting. While my work involves human specimens and survey data, a lot of other researchers in Côté Lab work with cellular models. Both types of work provide valuable data that can often guide clinical decision-making to improve quality of life for people living with HIV. 

What does your typical day look like?

Marie-Soleil: My days vary greatly depending on upcoming deadlines and whether I have ongoing cell culture experiments. If I do not have any experiments, I spend my day on the computer analyzing data, reading papers, and working on manuscripts. Experiment days vary widely depending on if it is a day where I am starting up the experiment, a maintenance day where I change the cell culture media, or a big analysis day where I harvest and prep the cells for subsequent flow cytometry. The cell culture experiments I conduct require daily lab work, so I try my best to spread my other work out throughout the week in an attempt to avoid burnout.

What impact do you hope to see from your work in the future? 

Tetiana: A powerful message coming from the community of people living with HIV is “Nothing about us without us is for us”. I hope that research projects that meaningfully involve community, such as BCC3, will address the true needs of the people we’re trying to serve. Ultimately, I hope that our study findings will improve care and everyday life for women living and aging with HIV, and also affect the way the research is conducted in this field. 

Marie-Soleil: My research provides information on the relative toxicity of antiretrovirals in an in vitro model, which may help inform and guide future human trials and strategies for the treatment of HIV in women of reproductive age. I would like to highlight the importance of utilizing relevant preclinical models and including people who become pregnant in clinical trials that assess medications that will undoubtedly be taken during pregnancy. Ultimately, I hope there is a future where all women have access to medications with sufficient pregnancy safety data.

Where can people find out more about your work? 

Tetiana: You can learn more about the BCC3 study on our website.

Marie-Soleil: @MarieSunSmith on Twitter

 

The BC Women’s Health Foundation on Embedding Equity

 

Author: Mita Naidu, Senior Manager, Public Engagement + Education, BC Women’s Health Foundation Editors: Negin Nia & Romina Garcia de leon (Blog Co-coordinators)

Published: June 3rd, 2022

“We do not learn from experience. We learn from reflecting on experience.” – John Dewey

BC Women’s Health Foundation (BCWHF) is a medium-sized philanthropic organization dedicated to advancing the full spectrum of women’s health. We help ensure women have equitable access to the highest quality healthcare when, where, and how they need it.

While our mission is clear, the work can be complicated when put into practice — especially when viewed through the lens of underrepresented communities. At BCWHF, we recognized we had work to do and committed to a journey of learning how to meaningfully embed equity and equality practices throughout our organization.

We knew that Equity, Diversity, and Inclusion (EDI) training would help provide clarity, support, and a sense of safety to our team. So, we began this journey with dialogue and exploration — and speaking truth to power.

The Path

This year, we honoured Black History Month, which was a new experience for us. With no organizational blueprint, our approach was experimental but not haphazard. For such a significant month, we wanted to ensure that we were on the right trajectory in approaching equity and inclusion at an organizational level, first and foremost. Not just in how we show up internally but also alongside the communities we collaborate with. 

We began our process months prior and kept two questions at the forefront. How can we meaningfully engrain the foundations of equity and inclusion in our organizational DNA? And why does it matter in the first place?

We asked these questions reflectively while also looking forward and considering the trajectory of BCWHF. Primarily, we wanted to assess if/how equity existed in our organization, policies, and culture and where we needed to fill gaps with action. We knew this internal ‘unpacking’ was a critical step towards earning the right to join conversations surrounding equity and inclusion. 

This is what we learned:

1) Stop stalling and start.

Our organization, like most non-profits, has a big mission with finite resources and capacity. This creates the perfect conditions for pre-empting equity work with “what-ifs.” Moving beyond fear and courageously addressing the gaps is crucial. Not starting can undermine organizational trust, especially among IBPoC staff who don’t get to walk away from inequality because it gets “uncomfortable.”

2) It starts at the top.

It is critical to collaborate on equity work across the organization. But EDI is transformational and, therefore, must start at the top. Leaders have to take charge in guiding through potential discomfort, friction, and difficult conversations, which requires a considerable investment of time. Leaders must also provide adequate support and feedback and not place this responsibility on IBPoC staff. This investment from leadership is essential, no matter how difficult the journey.

3) Authenticity is more than a buzzword.

Bringing our truths (safely) to EDI work reveals our privileges, biases, values and power dynamics. In doing so, we can build trust and connection through our actions. This is the nexus where EDI work takes hold. Through transparency, discomfort, and mistakes, impactful change can yield positive ripple effects that become organizational best practice. No longer considered a “soft skill,” — being an authentic organization can help develop community engagement. 

4) Be on the same page.

An organization may have many different voices, but having a unified institutional voice is vital in EDI work. Partners, staff, and community must know that an organization proactively drives forward initiatives that bring about parity and inclusion. This voice demonstrates that an organization is serious – and that there are no debates when it comes to fairness. Additionally, while workplace consensus is important, so is striving to understand the legacies and histories of systemic oppression and instilling those learnings within the organization.

5) Be consistent.

Being consistent is more difficult than it seems, but with consistency comes hope. Anti-oppressive language, strategies for all teams, inclusive branding, revising policies, recruiting IBPoC staff, check-ins and call-ins, and measuring outcomes are tools that can help an organization remain on track with EDI goals. Unyielding effort is required for organizations to transform a commitment to EDI into action. 

6) Community engagement is key.

Primarily, it’s to walk the talk of equity and earn public trust. Communities best understand real and tangible action and know when their voices show up in policy. They also know when they’re being tokenized and when EDI actions feel performative and temporary. Authentic community engagement, deep listening, creating space for dialogue, and committing to action matter most.

7) Mistakes are inevitable.

No organization has ever gotten it right. But for many IBPoC, just knowing an organization is applying these lessons is significant. While mistakes bring discomfort, this can be a good thing. It allows individuals to learn, adapt, and potentially change their perspectives. As staff, community stakeholders, and the public watch your EDI journey unfold – remaining open to criticism, dialogue, and assessment is paramount.  

Equity work takes consciousness, commitment, and consistency while recognizing that equity work isn’t for IBPoC. Ultimately, it is a chance for organizations to catch up and mitigate systemic gaps. At BCWHF, we have learned that the journey is as meaningful as the outcome. And this makes us better advocates as we undertake the actions in serving, supporting, and growing the community.