Tag Archive for: equality

Mastectomy, Then and Now: The Cases of Frances Burney and Marie-Claude Belzile


Author: Heather Meek, Ph.D., Associate Professor of English Studies, University of Montreal | Editors: Negin Nia & Romina Garcia de leon (Blog Co-coordinators)

Published: July 1st, 2022

Mastectomy and Women’s Health

Frances Burney (1752-1840) and Marie-Claude Belzile (1987-2020), separated in time by two hundred years, can be aligned to the extent that they both underwent mastectomies and felt the impulse to share their stories in writing. Burney’s 20-page letter, written in 1812, and addressed to her sister Esther, and Belzile’s essay Penser le sein féministe, published in 2019, offer accounts of breast surgery written from the perspective of the sufferer. Despite their historical distance from each other, and the significant differences in the virulence of their illnesses and the technical particularities of their treatments, reading Burney’s letter alongside Belzile’s essay reveals, strikingly, how certain aspects of the experience of mastectomy have remained consistent over time. 

Belzile’s text draws out the latent political potential of Burney’s account as it moves beyond the personal into larger contemporary feminist and LGBTQAI+ contexts and explores the politics of breast reconstruction. Both works serve as testaments to the importance of patient narratives to the history of women’s health, especially as explorations of the complexities of women’s relationships to their post-surgical bodies and appraisals of institutionalized medical practices and rituals. Burney’s and Belzile’s narratives depict medical encounters that exceed an ethos of biomedical conquest as they capture remarkable encounters with bodily variation and death.

Burney and Belzile’s Point of View

Burney and Belzile both grapple with physical and psychic loss as they contemplate the prospect of surgery and the fate of their breasts. Anticipating what she believed would be a tumour excision, Burney confesses to her feelings of “dread & repugnance, from a thousand reasons besides the pain”. She gestures implicitly to what it meant to lose a breast, which in this period was understood as a material entity integral to the life of the female body, and as a powerful symbol of maternal tenderness, feminine beauty, and sexual pleasure. 

Belzile acknowledges explicitly such multivalent cultural meanings of the breast and brings them into the current moment, explaining that hypersexualized breasts are, rather puzzlingly, displayed everywhere even as they are viewed as objects to be “concealed from male onlookers, revealed only in intimacy”*. She at once denounces and transcends such patriarchal notions as she mourns, in a way uniquely her own, the loss of her own breasts, remembering how she was forced to “think about the future of my chest in the urgency of a few weeks” when she received her cancer diagnosis. 

 While Burney’s account predates the consolidation of a distinct medical profession, and Belzile’s case is situated in our current age of rapid medical innovation, both authors offer critical accounts of entrenched rituals and systems that silence, objectify, or disregard female patients. Burney is unprepared when “seven men in black” enter her operating room, when her face is covered in a semi-transparent veil, and when she learns, for the first time, mere minutes before the surgeons begin the excision, that her entire right breast will be removed. 

 One might assume that such astonishing details are relics of Burney’s period, but Belzile describes not being listened to by her surgical team, which she fortuitously discovered had planned to insert, during her operation, tissue expanders to make possible an eventual reconstruction which she had made adamantly clear she did not want. She presents this not as a rarity but as a systemic problem – as one among many instances of breast cancer patients’ choices being discounted or trivialized.  

The Idealized Female Body

Both Burney and Belzile refuse to elevate an idealized, supposedly ‘whole’ female body, forcing their readers to come face-to-face with the physical realities of mastectomy. Burney, whose 20-minute operation took place before the advent of anesthetic, describes how “the dreadful steel was plunged into the breast – cutting through veins – arteries – flesh – nerves” . Evoking her own bilateral mastectomy, Belzile celebrates the altered realities of women’s bodies, and affirms that “a flat chest is a chest that exists”. Belzile’s essay and Burney’s letter resonate with Audre Lorde’s lyrical embrace, in her Cancer Journals (1980), of a vocal coterie of one-breasted women.

A final link between Burney’s and Belzile’s accounts is found in the way they resist triumphant narratives of the sort Susan Sontag scrutinizes in her foundational essay Illness as Metaphor (1978) – ones in which medical cure is “the great destination,” ‘survivor’ and ‘military’ metaphors of illness flourish, and the realities of mortality are averted. Burney, even as she assures her sister of her “perfect recovery”, maintains that she is traumatized by this “terrible business” whose recollection is “painful”. She thus refuses a comfortable return to her previous self. Belzile’s raw recognition of the departure of her “before body” is described, paradoxically, in poetic and exultant prose as she insists that a woman can reclaim her “body, welcoming with compassion its history, its scars, and its transformations”. This optimism does not, however, preclude a recognition of what Lorde calls our temporary status “upon this earth”. The specter of death looms, since, as her reader knows, Belzile’s cancer is incurable and will eventually consume her. 

Transcending historical boundaries and speaking to each other across centuries, Belzile and Burney, together, provide stunning images of flat and one-breasted chests, brave recollections of bodily violation and transformation, and extraordinarily honest confrontations with mortality.  

*All quotations in this essay from Belzile’s Penser le sein féministe were translated into English by Heather Meek.

The BC Women’s Health Foundation on Embedding Equity

 

Author: Mita Naidu, Senior Manager, Public Engagement + Education, BC Women’s Health Foundation Editors: Negin Nia & Romina Garcia de leon (Blog Co-coordinators)

Published: June 3rd, 2022

“We do not learn from experience. We learn from reflecting on experience.” – John Dewey

BC Women’s Health Foundation (BCWHF) is a medium-sized philanthropic organization dedicated to advancing the full spectrum of women’s health. We help ensure women have equitable access to the highest quality healthcare when, where, and how they need it.

While our mission is clear, the work can be complicated when put into practice — especially when viewed through the lens of underrepresented communities. At BCWHF, we recognized we had work to do and committed to a journey of learning how to meaningfully embed equity and equality practices throughout our organization.

We knew that Equity, Diversity, and Inclusion (EDI) training would help provide clarity, support, and a sense of safety to our team. So, we began this journey with dialogue and exploration — and speaking truth to power.

The Path

This year, we honoured Black History Month, which was a new experience for us. With no organizational blueprint, our approach was experimental but not haphazard. For such a significant month, we wanted to ensure that we were on the right trajectory in approaching equity and inclusion at an organizational level, first and foremost. Not just in how we show up internally but also alongside the communities we collaborate with. 

We began our process months prior and kept two questions at the forefront. How can we meaningfully engrain the foundations of equity and inclusion in our organizational DNA? And why does it matter in the first place?

We asked these questions reflectively while also looking forward and considering the trajectory of BCWHF. Primarily, we wanted to assess if/how equity existed in our organization, policies, and culture and where we needed to fill gaps with action. We knew this internal ‘unpacking’ was a critical step towards earning the right to join conversations surrounding equity and inclusion. 

This is what we learned:

1) Stop stalling and start.

Our organization, like most non-profits, has a big mission with finite resources and capacity. This creates the perfect conditions for pre-empting equity work with “what-ifs.” Moving beyond fear and courageously addressing the gaps is crucial. Not starting can undermine organizational trust, especially among IBPoC staff who don’t get to walk away from inequality because it gets “uncomfortable.”

2) It starts at the top.

It is critical to collaborate on equity work across the organization. But EDI is transformational and, therefore, must start at the top. Leaders have to take charge in guiding through potential discomfort, friction, and difficult conversations, which requires a considerable investment of time. Leaders must also provide adequate support and feedback and not place this responsibility on IBPoC staff. This investment from leadership is essential, no matter how difficult the journey.

3) Authenticity is more than a buzzword.

Bringing our truths (safely) to EDI work reveals our privileges, biases, values and power dynamics. In doing so, we can build trust and connection through our actions. This is the nexus where EDI work takes hold. Through transparency, discomfort, and mistakes, impactful change can yield positive ripple effects that become organizational best practice. No longer considered a “soft skill,” — being an authentic organization can help develop community engagement. 

4) Be on the same page.

An organization may have many different voices, but having a unified institutional voice is vital in EDI work. Partners, staff, and community must know that an organization proactively drives forward initiatives that bring about parity and inclusion. This voice demonstrates that an organization is serious – and that there are no debates when it comes to fairness. Additionally, while workplace consensus is important, so is striving to understand the legacies and histories of systemic oppression and instilling those learnings within the organization.

5) Be consistent.

Being consistent is more difficult than it seems, but with consistency comes hope. Anti-oppressive language, strategies for all teams, inclusive branding, revising policies, recruiting IBPoC staff, check-ins and call-ins, and measuring outcomes are tools that can help an organization remain on track with EDI goals. Unyielding effort is required for organizations to transform a commitment to EDI into action. 

6) Community engagement is key.

Primarily, it’s to walk the talk of equity and earn public trust. Communities best understand real and tangible action and know when their voices show up in policy. They also know when they’re being tokenized and when EDI actions feel performative and temporary. Authentic community engagement, deep listening, creating space for dialogue, and committing to action matter most.

7) Mistakes are inevitable.

No organization has ever gotten it right. But for many IBPoC, just knowing an organization is applying these lessons is significant. While mistakes bring discomfort, this can be a good thing. It allows individuals to learn, adapt, and potentially change their perspectives. As staff, community stakeholders, and the public watch your EDI journey unfold – remaining open to criticism, dialogue, and assessment is paramount.  

Equity work takes consciousness, commitment, and consistency while recognizing that equity work isn’t for IBPoC. Ultimately, it is a chance for organizations to catch up and mitigate systemic gaps. At BCWHF, we have learned that the journey is as meaningful as the outcome. And this makes us better advocates as we undertake the actions in serving, supporting, and growing the community.